What is Neurofibromatosis?

Neurofibromatosis is a genetically-transmitted disorder in which nerve tissue grows tumors that may be harmless or cause serious damage by compressing nerves and other tissues. The tumors may cause bumps under the skin, colored spots, skeletal problems, pressure on spinal nerve roots, and other neurological problems.

Our Clinic
At the Walt Disney Pavilion at Florida Hospital for Children, we offer a clinic to provide care for children, adolescents and adults who have been diagnosed or suspected to have Neurofibromatosis (NF). NF is a genetically transmitted disorder causing tumors to grow on nerves and surrounding tissues. Specialized physicians and their teams can diagnose NF after a thorough physical exam and help manage the progression that occurs, such as:

• Complications from tumor formation
• Abnormal spine and bone development
• Chronic pain management
• Cosmetic abnormalities requiring surgery
• Cognitive or behavioral changes
• Benign and malignant tumors

Committed to improving the quality of life for those living with the disease, the Neurofibromatosis Clinic at the Walt Disney Pavilion at Florida Hospital for Children provides patients with access to medical professionals from many fields who work together as a multidisciplinary team. This clinic provides the following services at one location:

• Diagnosis
• Support and Education
• Clinical Trial Information and Participation
• Specialty Referrals
• Condition Monitoring and Follow-ups
• Genetic Counseling

To learn more about the Children's Tumor Foundation visit http://www.ctf.org .