What is Neurofibromatosis?

Neurofibromatosis is a genetically-transmitted disorder in which nerve tissue grows tumors that may be harmless or cause serious damage by compressing nerves and other tissues. The tumors may cause bumps under the skin, colored spots, skeletal problems, pressure on spinal nerve roots, and other neurological problems.

Our Clinic
At the Neurofibromatosis Clinic, we provide comprehensive diagnostic and treatment services, as well as genetic counseling for adults and children. We are proud to be one of the 31 affiliated clinics in the Neurofibromatosis Clinic Network (NFCN). The NFCN is a nationwide program that recognizes Neurofibromatosis clinics in an effort to standardize and improve clinical care.
Our program provides the following services:

• Diagnosis
• Genetic Counseling
• Follow-up
• Specialty Referrals 
• Support and Education 
• Clinical Trial Information and Participation 

We have a dedicated team of people who are very enthusiastic about growing the services of this clinic and much activity is currently taking place to promote it and expand the services offered.

Our Clinical Team
Co-Director Children’s Center for Cancer and Blood Diseases:
Clifford Selsky, MD
Co-Director Children’s Center for Cancer and Blood Diseases: Fouad Hajjar, MD
NF Clinic Director, Neurosurgeon: Eric Trumble, MD
NF Clinical Coordinator: Jennifer Ketchersid RN
Neurologist:  Carl Barr, MD
Neuropsychologist:  Michelle Dolske, MD
Neuropsychologist:  Michael Westerveld, MD
Medical Genetics, Pediatrics: Lynda Pollack, MD

Our Administrative and Support Team
Marla Silliman – Administrator, Walt Disney Pavilion at Florida Hospital for Children
Kristin Duquaine – Director of Community Health and Wellness, Walt Disney Pavilion at Florida Hospital for Children
Fernandez-Valle, MD – Researcher at University of Central Florida (UCF)

We are located at 2501 North Orange Avenue, Suite 589, FL 32804
For more information about our services or to schedule an appointment at The Neurofibromatosis Clinic please contact Jennifer Ketchersid RN at 407-303-KIDS.

Jennifer Ketchersid RN is the Clinical Coordinator for the NF Clinic. Jennifer has a nursing background in pediatrics. She will be the patient’s first contact with the clinic. Jennifer will assist with specialist referrals, appointments, insurance, and will help facilitate your care. Prior to your clinic appointment Jennifer will contact you, take past medical history and help answer any questions.

To learn more about the Children’s Tumor Foundation visit http://www.ctf.org/.